Raw. Ugly. BAM. #InfertilityUncovered

It’s still raw.  We are still infertile.  Infertility hasn’t suddenly left us.  It has left a horrible wound and it hasn’t healed.  We have not resolved our infertility.  We struggled to conceive Aviana for 2.5 yrs and now she is 2.5 yrs old.  We loved, cried, hurt, struggled, laughed, loved some more and lost.  We may not be on the ‘infertility roller coaster’ right now as we wait.  We don’t really know what we are waiting for, but infertility has STOLEN the freedom from us to build our family in the way we want to.

It’s ugly. We know what that roller coaster is like.  We are not naïve newbies to this gig, it’s not any ordinary theme park roller coaster.  It’s the roller coaster of your nightmares.  It’s fast, it’s slow, it turns you upside down, it spins you around until you scream to let you off, it drowns you, it makes you sick to your stomach, it takes you high, it takes you low and deep underground, it transports you to another world, you are trapped and don’t know if you will ever get off.  But we made it off that ride. So why would we want to get back on it knowing what we know today?

It affects our decision making in all things family building.  I mean, most couples face the challenging question “Should we grow our family?” fertile or not.  But add on the ugly that is infertility and it seriously warps your perspective in answering that question.

For this National Infertility Awareness Week, I want you to know that it still hurts and it will keep hurting, so please don’t forget us.  For me it hurts in a different way than before.  It can be so easy to forget my infertility….then suddenly BAM, a pregnant woman complains about her pregnancy, or BAM you find yourself staring at cute tiny baby outfits wondering if you will ever get the chance to fill your basket, or BAM someone asks you when you will give your daughter a sibling.  BAM, it just comes out of nowhere.  And that’s one of the differences of infertility second time around. Sometimes, it just doesn’t phase me, but other times it really does and it surprises me every. single. time.

This is #InfertilityUncovered. This is a side to infertility that can easily forgotten.  So if you are out there, with a child already but your family incomplete because of infertility, you are not alone and your feelings matter.

For more information about Resolve’s National Infertility Awareness Week see: www.infertilityawareness.org

 

Our Frozen Embryo

It doesn’t seem fair that you existed in this world for 5 days, but we pressed the pause button.

We have frozen you in a moment in time, but we don’t get to meet you for a while yet.

You are known as the power of life, but we pay $60 a month to keep you just so.  It’s such a small cost in comparison.

You made it against all odds to grow strong, to be the strongest as you could in just 5 days, but we needed you to wait a while whilst my body repaired itself.

It’s been two years of knowing you, but we don’t know what the colour of your hair is meant to be, whose eyes you are meant to have, whether you have your father’s smarts or your mother’s craziness.

Will your sister ever get to play with you?  What do we tell her if you don’t get to play together? ….And if you do, how do we tell her that you have been in this world longer than her? It’s a mind blowing thought.

How can we ever make a decision not to meet you?  How do we make a decision instead that would result in us giving you to some researcher that will never think of you in the way that we do.  How do we make a decision that you are better off not with us?

I tell myself that you sing to yourself ‘The cold never bothered me anyway….It’s hard to imagine you with your own personality.  Your own you.  But we try to keep it clinical because that’s how we can cope, but it’s hard to not let our minds wonder to happiness and completeness.

Your existence in itself is both awesome but a challenge.  I wish it wasn’t a challenge, but it’s not so simple.  I wish we could look into that magic crystal ball and it tell us that you will be fine, it will tell us that you will fight to be here with us and you will win. We will win. The world will win to have you with us.  It would tell us you are small but mighty.

Everything happens for a reason or does it?

When I hear the statement ‘everything happens for a reason’ my insides start to gurgle a little, my heart rate begins to rise, I feel a bit sick. I try not to let it spin my head around. Being able to truly believe that everything happens for a reason must be amazing. I used to believe it, I used to believe it because it would help me get through some of the crap in my life. I’d tell myself that this shit has happened to me because it’s going to make me a stronger person, a better person, a more empathetic person, more resilient. I can turn these crappy things that happened to me into life lessons. I would be that great oak tree that gets stronger after it gets struck by lightning.

But then life got really shit when it came to growing our family. Infertility and pregnancy loss. And I questioned it. I met some other incredible women who had been through some shittier shit. I questioned it. I always sought the good out of evil…I still do, but I can’t always see it right now. So I settle with, ‘Everything happens’. Period. Full stop. The end.

But what does a mantra like ‘Everything happens’ do to me? Does it make me bitter? Does it make me a fool for not seeing the good out of the bad?

I don’t talk about religion much here on this blog, but when people say ‘it’s god’s plan’, to me that’s even worse. When I was a kid and I was upset about something I used to close my eyes tight and through my tears ask god why? Why me? And god would reason with me. Actually, I was reasoning with myself, I just pretended it was god talking to me because somehow it made me feel a little better. But telling someone when they are going through struggles ‘it’s god’s plan’ is surely enough to make someone lose their faith, because it is so hard to understand why god would let a baby die…because… it’s his plan. It’s hard to understand why god didn’t bless a family with a baby of their own. It’s hard to understand why our loved ones are taken from us before their time. It’s hard to understand why god would let a terrorist kill people at an airport who are about to go on holiday with their children (innocent children) or who are separated from their loved ones because of work. It’s truly hard to understand what the greater good or plan is. If this was true, surely god is evil? I honestly don’t think that would be the case. For me, I think it is probably better to say that it is god’s plan to be with you, if you let him, when shit is thrown your way.

My current feelings are that time spent thinking about the ‘why’ is time spent wasted. Infertility has taught me how to be in the present. It is therapeutic, it’s survival. Although, it could be argued that by saying ‘everything happens for a reason’ and ‘it’s god’s plan’ would actually HELP with living in the present, but I feel it would be like living in the present with your head in the sad singing lalalalala!!

So for now I’ll try to ignore those few words ‘everything happens for a reason’ and live in the present otherwise it will eat away at me, little by little. I’m glad I’m mentally able to do that right now. I know it won’t always be like that.

Perhaps I’m just parking it for another time when I feel like thinking about the bigger why. Or. Perhaps infertility has actually taught me coping mechanisms for shit thrown my way.

Infertility round 2

Caught between a rock and a hard place is what I would call planning for a second child after dealing with infertility the first time around. And we are not even at the stage of planning number two, we are still at the early stage of deciding whether we want a number two child.

Let's go back to times before we faced infertility. The times when we were naive to think getting pregnant was the easy, fun part, and it was the subsequent pregnancy and beyond that would be the more challenging part of growing our family. I'm pretty sure we would have said that our family would ideally consist of two children, a dog and a cat (or two). Today, if you asked us what our family would look like in several years time, I wouldn't be able to tell you because I just can't imagine it right now.

Today, I can't imagine Aviana playing with a sibling in the garden, showing them how to throw and catch a ball, or holding her baby brother or sister in hospital, asking THAT question 'where do babies come from?' or her poking my tummy and proudly saying to random people that mummy is having a baby. I can't see it. I don't want to see it. Because if I see it, I think it, I feel it and if it never happens, it will tear me up forever. But sometimes my mind does wonder there and I try not to cry over the fact that it is so distant and fuzzy. The future is so murky.

And yet, I am better prepared than I was before Aviana became part of our lives. Today I know I am infertile, I know what the chances of getting pregnant again are, I'm an infertility warrior, this isn't my first rodeo!

Somedays, I'm positive and hopeful….perhaps my hormones have 'reset' and I'll get pregnant without medical intervention, we have a frozen embryo I won't need to stimulate again, I now know all the IVF tricks of the trade, it would be a piece of cake!

And other days, I'm down and negative…I'm getting closer to 40 than 30, my eggs are even poorer quality than they were before, we only have ONE embryo in the freezer-it's got a 50% chance of surviving the thaw, there is a good chance I will have another IUGR pregnancy, we will be doing this with a toddler, I'm not sure I can cope with another IVF stimulation and suffer from OHSS. And then there is the risk of pregnancy loss, An ectopic pregnancy was a cruel experience.

And the negative is winning at the moment, infertility round two doesn't look good to me. I don't want to waste the precious time I have with Aviana whilst she is this small worrying about infertility. I'm not sure where this is going, but knowing I managed to survive that infertility journey the first time and looking back at that mountain, I'm not sure I can do it all over again.

Back again

It’s been a while, but that doesn’t mean I have forgotten about my great pudding club hunt.

Last week I attended our local infertility support group meeting for the first time in well over year and half.  Not because I’m trying to get pregnant again, but because my infertility has yet to be resolved.  It’s on my mind still.  Because I want to help others still in the trenches whilst I have a chance to look at it from a different perspective.  I have lessons I have learned I can share and want to share.

It was a great meeting, I saw some old faces and new ones.  We talked about jealousy and infertile guilt.  We talked about self care as a way to help cope with those feelings better.  I still get jealous of those who can ‘plan’ when they have a baby.  I still get jealous of those with beautiful baby bumps.  I still feel guilty where some of my infertile friends have yet to hold their much wanted babies.

Here is where we are at right now.  We have one frozen embryo from our first round of IVF.  We still have unexplained infertility.  We now have the added complication that because of my unexplained case of Intra-Uterine Growth Restriction (IUGR)  there is a good chance it could happen again, and because we don’t know the cause there is very little we can do to try to prevent it from happening again.

In fact when I went to my annual OBGYN checkup last week, I asked the doctor what they could do differently if I were to get pregnant again.  She INSULTED with the first thing that came out of her mouth – “Well first of all, we make sure you eat well and healthy…” FUCK YOU. It was as if she was saying that I was the cause of Aviana’s IUGR.  She also said that they would do an extra scan at 32 weeks.  But that was all she had to say about it.  Now, admittedly, she wasn’t my OB for my pregnancy and I ambushed her with that question.  But the first thing that came out of her mouth still hurt.  I am questioning whether I will go back there again.

Anyway…the point is that this unexplained IUGR makes us question whether we would even want to risk being pregnant again.  It’s an added complication if we ever want to grow our family again.

Also, I wanted to note that the majority of those who I follow on blogs and instagram have managed to succeed in bringing home their babies.  There are some of you out there who are still fighting, or have taken the path of what a lady in my IF group calls as ‘forced child free’.  I think of you often and wish infertility wasn’t such a totally unfair bitch. XX

What a difference a year makes

After the second explosion I remember turning around to see an old lady cowering behind her suitcase. The fear in her eyes was immense, she was terrified. OK we all were terrified, but it was her who I vividly remember the most. I asked her if she was OK, was she hurt, but she didn’t understand me – probably because I was speaking English when I was in Brussels airport. 

I remember that moment today one year later after the Brussels terror attacks, not because it was the one year anniversary(?) but because of the terror attacks in London yesterday. I heard today that another person died from his injuries – a 75 year old man. It made me think of the old lady in Brussels. It then made me reflect about how different my life is today one year on. 

One year ago I was also in the midst of down regulation for my upcoming 3rd IVF cycle. The one thing I thought of alongside figuring out how to get out of the airport alive was my medicine…I NEED MY MEDICINE! Looking back now it was daft to carry my bags with me, I should have left them behind. But all I could think of was needing to take my next injection. Not even a damned terrorist was going to stop me from this IVF cycle! And now here I am, one year later back in the UK with my beautiful 3 month old daughter, Aviana, the outcome of that cycle. 

One year ago if you told me my future I wouldn’t have believed you. On the edge of quitting, I somehow felt strength from adversity. I’m so glad I didn’t quit because I can’t imagine my life without Aviana in it.

Bad things do happen; how I respond to them defines my character and the quality of my life. I can choose to sit in perpetual sadness, immobilized by the gravity of my loss, or I can choose to rise from the pain and treasure the most precious gift I have – life itself.

-Walter Anderson

And so Life goes on. I will continue to fight terrorism and I will continue to fight the disease that is infertility with all of you. 

X

TTC and no more exams

I thought I was prepared for my 4 week postpartum checkup with my OBGYN, but when I got there I was taken by surprise. 

I had planned a few questions for my doctor….

  1. How to manage my urinary incontinence?
  2. What to do about my milk blister on my nipple?
  3. When could we TTC (try to conceive) again if we wanted to in the future, considering we have one frozen embryo? After all, I’m not getting any younger. Also, as someone who likes to think about the future it would be helpful to consider what is the art of the possible.

But when I got to the appointment, I never asked the third question about TTC-ing. Why? Because I didn’t really want to know. I thought I did, but when it came down to it, I realised I was afraid of the answer. I was afraid of my age being a factor, afraid of retelling my story of how Aviana finally came into our world to a new doctor, afraid of having a date in my head of when we may start another journey when we just finished this one. Plus I should be living in the moment. Well For now anyway 🙂

After my appointment I got in the car and realised I wouldn’t be going back for a while. 

I burst into tears. 

Why did I cry? I’m not totally sure other than assuming crazy postpartum hormones, but the realization that I didn’t need another vaginal exam after several years of showing my hoohar to countless number of doctors, residents, nurses and med students on a regular basis was actually a big relief. 

So it was a cry of relief for no more exams, and a cry for uncertainty to when we would TTC again if we decide to do that. Maybe Aviana is all the family we will want, maybe we will want a brother or sister for her, for once infertility is not on the forefront of my mind. So ultimately it was a cry of relief.

A new blogging adventure

The Great Pudding Club Hunt is over…for now.  But my infertility hasn’t been resolved.  Infertility doesn’t define me, but it is part of my life now.  I love this blog, I love the amazing people I have met through this blog, I love how it has helped me cope with infertility and how it taught me to keep fighting when things got really dark.

But this blog is not about being a parent, in fact it has always been about me not being a parent and dreaming of becoming a parent.  I am now a parent and I don’t want to write about being a parent here, I want to save this place as where I can speak freely about infertility and pregnancy loss.  I wanted a similar place where I can speak freely about being a parent, and that is not here but elsewhere.  So I have set up a new blog…

The Inconceivable Adventures of Parenthood

(https://inconceivableadventuresofparenthood.com)

I’m a little scared stepping out into the parenting world, I’m hoping this new blog will help me explore my thoughts and ideas.  There is so much parent bashing on the internet I am a little terrified!  But like I have used the great pudding club hunt to explore my thoughts, cope with the low times and share the good times with others in similar situations, I hope to use the inconceivable adventures of parenthood likewise.

I hope to see some of you there!!!

I will be posting here still, I am not going away, but it probably won’t be as regular (until our next pudding club hunt anyway ;-p)

Same old story – it’s just unexplained

PC Diary @38Weeks 0 Days

The unknown doctor came in, shook our hands and looked at us in turn, he looked concerned.  But after a strange pregnant pause he managed to get the words out….”Everything looks good with the flow to and from the placenta”. Phew…a sigh of relief! From the look on his face, we both thought he was going to say something bad.  Another awkward pregnant pause and he said to us “We don’t know why your baby is measuring small.” (This doctor had very a very strange and awkward bedside manner)

Chris and I had bets on how this appointment with the Maternal Fetal Medicine (MFM) specialist would go.  We both bet it would be ‘unexplained’, because that just seems to be the way the cookie crumbles with us.  Unexplained infertility has done that to us, it has better prepared us for accepting the unknown.  By the way the unknown SUCKS.  But nevertheless, we seem to be able to handle it a lot better now.  We think that the doctor was expecting us to give him a hard time about not knowing why Rocky is measuring small.  But instead we just said, OK so there is nothing obviously seriously wrong? Although, she was even further behind than our past growth scan in the 3rd percentile (She was in the 5th percentile the week before), but these measurements have error inaccuracies, especially at this late stage of the pregnancy. There was no denying the fact that she is still very small and behind.

The doctor recommended that she be delivered in my 38th week so we can get her out of me and feed her up.  Later that day I went back to my OBGYN for another non-stress test and an ultrasound to check on my amniotic fluid levels.  All was looking good.

It was an emotional roller coaster day of nerves and relief.  We don’t know exactly how healthy Rocky will be when she arrives into the world and what the impact of the growth restriction has been on her, if any.  Perhaps my anemia was the culprit, perhaps it has been my bowel problems not getting the right nutrition to her or perhaps she is just a naturally skinny thing.  We don’t know, but that’s OK, because we are going to meet her very soon and hold her in our arms.

At my next appointment with my Obstetrician we talked about the induction process.  We had been penciled in to arrive at the hospital on the evening of the 20th December to have my cervix ‘ripened’ overnight.  Rocky is currently head down and engaged at Stage 0 right now, and I am still 1cm dilated and 50% effaced, which is a good thing and may mean I don’t need to have my cervix ripened.  If that is the case, then I may be asked to come into the hospital in the morning of the 21st December and they will put straight onto the drug Pitocin (it mimics oxytocin, the hormone which causes contractions).  The doctor warned us how long this process can take 12-24 hrs, and there is no way of knowing how my body will respond.  Sometimes a small baby can be a good thing and time can go quicker and I may have an easier time pushing her out!  Or sometimes not….  they will keep a close monitor on Rocky because sometimes growth restricted babies struggle to keep their heart rate up during contractions.  If Rocky’s heart rate decelerates then there is a very good chance I would end up having a cesarean section.  But the great news is, there is no reason for me to not have a vaginal birth.

My birth plan is that I wish to avoid pain medication at all costs.  However, I am now being induced using Pitocin and this can cause contractions to be a lot stronger and successive far quicker than a natural labor would be.  This means that there is a higher chance of this being painful!  My current feelings are that I will try my dammed hardest to not ask for the pain meds – in whatever form.  Chris is well versed in my desire, and my doula will be there to help me get through it too.  Although I want a vaginal birth, I have spent some time thinking about how to cope with an unexpected c-section.  I am now feeling ready for that moment because I know Rocky’s health is the most important thing to think about.  Luckily I will be on one of my favourite obstetrician’s service that day and I feel like I can trust her.

All this being said, the past week has been strange.  I had some plans for my maternity leave…I was excited to be taking some time to myself and thought 4 weeks before Rocky’s arrival I would have some time to do these things – Christmas dinners with friends and colleagues, executive development program study, knitting, Christmas card writing, email sorting, Christmas shopping, housework, blogging and more.  But with being on ‘rest’, many doctors appointments and not knowing what is going on has actually been exhausting and I have done very little on this list.  Even the things that don’t require me to leave the house for I haven’t been able to focus on, I have just been lethargic and brainless.  It doesn’t help that I am not even sleeping well and having lots of pregnancy related nightmares.  I might be physically well rested, but my brain sure isn’t.

Finally, just one more thing.  Now when people say to me, oh you look so good for 37/38 weeks pregnant…I actually feel bad inside.  I now know that my bump is small and I have put on little weight to the detriment of Rocky.  Until I meet her and hold her safely in my arms, that guilt is not going to stop, no matter how much people will tell me it’s not my fault.

But guys….I am almost at the end of all this…I am on the brink of exploding with happiness about that!

THAT moment

The Pudding Club Diary @ 16w3d

Chris and I had THAT moment last night. THAT moment when you realise you have the summit in sight, when the pain, tears and anxiety were ALL worth it.  And we haven’t even met our little one yet.

As I was getting undressed for bed I pointed out my ‘bump’ and it’s definition.  Chris went to put his hands to it.  I let him…which is not a usual occurrence because if you are a follower you will know my personal issues with my stomach and understand that I still struggle with this.  But I also know I have to let Chris feel the little one too.  The day before, I lay in bed before work just staring at my naked tummy for about 20 minutes watching little Rocky squirming around in there.  I still haven’t really felt Rocky move, but I definitely have seen him/her moving in the past week or so.  That evening as Chris reached out to my tummy – he exclaimed…”I can feel Rocky!!”.  We looked at each other, and we were both teary eyed in that moment.  It was a moving moment.  Silently we knew what this meant.  It was real.  It wasn’t on some computer screen…it was physically real, in our hands. Our baby is alive and wriggling.

So amazing 🙂