Who am I and why am I here?

My very first blog post was written at 5AM, almost 9 months ago.  One early weekend morning I just couldn’t get back to sleep.  I had so many thoughts whirling around in my head, it hurt a lot.  You see I was facing a mountain, I was just starting my journey to join the great pudding club under difficult circumstance, my journey to overcome infertility.  After I had written my ideas down in that blog post, my head felt calmer, clearer – I felt free.  I re-read my first published post to myself over and over again.  My first post was entitled: “The Beginning?  Or the Beginning of the End?” There was something comforting about seeing the words on the screen as I felt a huge relief begin to slip off my shoulders.

It was no longer a secret that Chris and I were struggling to get pregnant.

But WHO AM I?

Starting with the basics, I am a 32 year old Brit living in Virginia, USA.  I moved here with my husband Chris after we decided we would like to try living abroad before settling down with children.  So I applied for a job with a 3 year contract, and here we are!! 2 years and 9 months later, now with the offer of a permanent contract in our hands, we have decided to stay for a little bit longer.

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We are not done with the USA just yet, Chris and I both have good jobs and we still have a lot of America to see.  A big part of our decision to stay longer is that my job offers excellent insurance coverage, including amazing infertility coverage.  If we returned back to the UK, we would have to wait a long time to receive IVF treatment with the NHS – we could probably afford one round of treatment privately, but that would require taking on debts.

I can tell you that with my blog you will see an open and honest woman, but I am not good with confrontation, so it is unlikely I will be offending anyone anytime soon.  You will read about infertility treatment, infertility research, dealing with emotions, what it is like as a Brit living in the US and maybe I might talk about what has got my goat that day.  However, I can be very emotional – although I am an analyst by profession, I apply emotion to my research – what I really mean is that, yes – I am a scientist, but I’m more of a social scientist, so I tend to challenge the statistics and look for other explanations, I don’t like to follow ‘the algorithm’.  Although I do LOVE a good chart or stat.  Seriously, I have a mug at work that says “I love Spreadsheets”, some of my military colleagues think I’m a big geek.  I also like learning and trying new things, although friends who have known us for a lot longer will tell you that we have been less adventurous over the last 2 years than we ordinarily are, but this is one of the sad effects of infertility.

Why am I here?

Blogging gives me a sense of off loading the whirlwind of thoughts that infertility brings to a couple.  But I have discovered something far more valuable – a community of like-minded bloggers who support and care for each other.  Sure you can find support in forums, but there is something longer lasting about blogging – a personal insight into an incredible journey and a deeper level of love and support.

My blog has also provided an avenue for friends and family to keep up-to-date with our journey, we have opened up a level of awareness to people who had no idea what infertility entails, and this will continue to be another goal of mine.  Infertility is not a dirty word, it is nothing to be ashamed of – yes it hurts so so much, but it can hurt a lot less with the love and understanding from those around you.  I have experienced this myself.  This is why my blog is open to everyone and anyone who wants to understand.  Please follow, and please comment – I am always open to alternative views, ideas and suggestions!

You just can’t make this stuff up – facebook again

They say a picture paints a thousand words…so here it is.

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For those who cannot see this picture, it is a screen shot of my personal facebook post from this evening.  I wrote:

“It has been a difficult week for the both of us, I am pregnant, but the doctors have now given us less than a 1% chance of my pregnancy continuing successfully.  We wait to see how things go, but have readied ourselves for the worst.  We are being open and honest because so many other struggle with this in silence.  The IVF process has been a roller coaster of emotions for us and would like to say thank you for everyone supporting us through it all.”

Above my post is a facebook sponsored advert for stitch fix maternity clothes.  Can you believe how mad I was to see this – only 5 minutes after posting it??? Especially after I have already changed my facebook settings to prevent all ads relating to parenting, family, pregnancy, babies etc.  Clearly the facebook algorithm reads my post status with “I am pregnant” and over-rides my chosen settings.  The fact that I am already a stitch fix customer adds insult to injury!!

I will write to facebook to tell them how upset this made – in spite of the fact that I had changed my settings to prevent this from happening.  They really must do better at this.

On the positive side, we have had lots of love and kind messages in response.  We thought it was time we gave an update because today when we went to our softball social league where someone congratulated us – then we had to tell them the bad news, and I think they just felt awkward over it.  Facebook – the good, the bad and the ugly.

It can be all a little bit confusing

Infertility treatment IS pretty darn confusing.  And I’ve spent 100s of hours researching it.  It’s confusing because there is no one single way to treat infertility.  If they had figured out a magic pill to get you pregnant we would all be taking it.  Unfortunately, there isn’t that one pill.  There are many causes of infertility and so treatment is specific to the couple being treated.  The journey each one of us take to the great pudding club will be unique.  And it can be confusing with all that medical jargon, drugs (brands and generic versions), procedures, timings…and to make things worse, it will probably be different each time we have another try to make a little one.

We have been asked many questions by friends and family about our infertility, and I am so glad they do ask – firstly, it shows that they care, and secondly, it helps spread awareness of infertility (did you know that 1 in 10 couples are infertile?).  So to this end, I have put together a page on my site that introduces some of the important terms we talk about a lot, all in one place.

(My new page: What does it all mean?)

I have also updated the ‘about me’ page to include a timeline of what we have tried so far.  We will be using these pages as a place to direct family and friends for a bit of background as we start our first IVF cycle and tell a few more people what we are going through.

My dear friends, I just wanted you to know how grateful I am that you are here with us and support us along the way.  Thank you for understanding and thank you for providing us with words of strength and comfort X

Facts are stubborn things

Facts are stubborn things; and whatever may be our wishes, our inclinations, or the dictates of our passion, they cannot alter the state of facts and evidence.

John Adams, ‘Argument in Defense of the Soldiers in the Boston Massacre Trials,’ December 1770

Facts are stubborn things, and in a court of law the statement attributed to Mr. Adams makes great sense. ‘…Whatever may be our wishes, our inclinations, or the dictates of our passions, they cannot alter the state of facts and evidence.” What this quote fails to address are the situations in which emotion outweigh fact, override fact and outright overwhelm fact,

We are meeting with our IVF counselor this week to discuss the timetable for our next treatment. We will sit and discuss the day by day steps to be taken, hear factual descriptions of the laboratory procedures and be given % chances of success. All the facts will be laid out before us, helping us understand how our chances of conceiving will be good. And yet, we will probably leave the meeting with some degree of trepidation, some niggling concern, and perhaps some fear….what if it doesn’t work this time? The cause of these feeling is emotion, overriding the logic and the facts.

The facts of IVF are only part of the story, in fact (pun intended) they are only a small part of the IVF journey, Emotions are the main event, and this is where the trouble starts. Emotions are irrational, they can sneak up on us and they make this entire process much harder. Couples going through infertility treatment have to deal with a lot of new facts whilst at the same time dealing with a lot of new emotions, many of which will be strong emotions. Whilst the IVF clinics are sensitive to this it is not their role to handle the emotions for the couples, that is something the couples must do for themselves.

Couples are a team, and strong couples will work together through the hard times, supporting each other, with each person playing a part. Usually hard times impact one partner more than another, such as a the death of a relative. This is not to say couples don’t share pain but there are very few occasions that truly impact both people equally; the loss of a child perhaps being the most obvious. IVF is a little different, the hard times are experienced by both people at the same time but the nature of the hardship is likely to be different for each person. With IVF it is rare for the issue to be linked to both partners, so perhaps one partner may have feelings of guilt that they are ‘at fault’. Conversely, the other partner may feel guilty because they don’t have any issues and therefore are causing pressure for the person with the issue. This type of second guessing is all to easy, and comes from us making assumptions and trying to apply logic (often flawed logic) to try an understand emotional situations.

Couples that do not communicate often and openly are liable to fall victim to this second guessing and assumption making. Couples that try to conform to stereo types are also at risk. If a man feels that he should be supporting his partner and should be the ‘pillar, the rock, the strong supportive one’, then he is not being honest to himself about his emotions and he is not being honest with her about how he feels. This type of approach can be done with the best of intentions but cause the worst of responses. The man may appear to be unaffected by the issues and thus the woman may wonder if she is over reacting and end up hiding her feelings. This is the complete opposite of what the man may have intended.

So what am I getting at here.? Openness, honesty and regular communication can help prevent misunderstandings when dealing with strong emotions. We (Dani and I) have found that talking a little and often has helped us, talking in the shower together, whilst preparing dinner or when driving to the shops. There is no schedule for us to talk about the emotions we feel, there is no time that is off limits and this helps us…at least I think it helps us….perhaps Dani is not being open with me and I am making assumptions….see how easy it is to get caught in this line of thought?

By being open about how we feel means we don’t get washed away in a torrent of emotion when faced with tough facts. Knowing that we are not hiding anything from each other makes the journey a little easier, a little safer, and a little less scary.

Where to go for more information about IVF?

When we decided to go ahead with IVF at our last appointment, the doctor gave us a rundown about the whole process, but I did not learn anything new that I had read about already.  Of course, I had done some research on top google hits about the process in general. I have also been following a few blogs about ladies going through IVF themselves.  But I will be honest…I have not really stepped up to my usual level of research.  Probably because I thought I had plenty of time before we start this.  Also I’ve been keeping myself busy the last couple of weeks, both at work and at play.  Next week we have our first appointment with our nurse, so I want to make sure I ask all the right question from the outset.  And so, the time has come!  I feel like I have a big gaping hole in my knowledge and I need to fill it…stat!!

When I first started following blogs I was put off following IVF blogs that were overly acronym-ised and had lots of numbers on it.  Without any reference, it felt like gobbley-de-gook to me.  In fact it was (and still is) terrifying.  I am sure it will all make sense soon, but for now I am following a select few who make it easy to read for newbies (thank you for that by the way!).  But where do I start my research?

Areas I would like to better understand:

  • Medication for IVF
  • Embryology
  • Ethics
  • ICSI
  • Complimentary Therapies
  • The statistics low down! Because I just can’t help myself being an analyst by trade, I’ve got to know!

Do you have any good suggestions for books or websites that you have found helpful with your IVF journey?

The $$$ lowdown

I have created a new page on my site that sums up all the costs of our infertility journey so far.  I will keep this up to date as much as possible…I have copied the text from it and pasted it below (or here is the link to the page)

We are very lucky that our medical insurance includes coverage for the treatment of infertility, including IUI and IVF.

We are being open and honest about these costs because it is important for people to understand the difference having insurance coverage can make.  Only 15 states in the US make it mandatory for insurance providers to cover infertility treatment, and even some of those are extremely limited.  There is much debate on whether infertility should be covered as an essential health benefit.  There are many campaigns ongoing to change state law in this regard (www.resolve.org)

There is definitely a lot to be said about the psychology and stress to infertile couples over spending this vast amount of money if they do not have insurance coverage for infertility.  Chris and I find this process stressful enough as it is without the added burden of the actual cost.  I cannot even begin to imagine what it would be like without coverage.  At each stage of our journey we have had to get approval from our insurance company and with having an ‘unexplained’ diagnosis we have always been nervous that they will not cover us.  However, we have been fortunate so far. Fingers crossed they will cover our IVF too.

Item Full cost Insurance covered? Final cost to us
Ovulation Kit (pack of 20) x3 $70.00 No $70.00
Pregnancy Tests (various types) x4 $85.00 No $85.00
Basal Thermometer x1 $13.00 No $13.00
Pre-seed Lubricant x1 $24.00 No $24.00
Chris blood tests $572.00 Yes $10.25
Dani blood tests $560.00 Yes $14.43
Reproductive Endocrinologist Consulting Fees (Doctor visits) x3 $340.00 Yes $5.85
Ultrasounds x4 $900.00 Yes $71.72
Anti-biotics for HSG $15.97 Yes $1.60
Sperm Analysis $110.00 Yes $1.53
HSG $835.00 Yes $29.18
Letrozole x3 $8.53 Yes $0.86
Ovidrel x3 $371.16 Yes $37.11
IUI x3 $765.00 Yes $36.81
Sperm Wash x3 $320.00 Yes $16.80
Progesterone suppositories x3 $147.00 No $147.00
Running Total* $5,136.66   $565.14

A note about our healthcare insurance.  We pay a 10% co-pay for each bill of the ‘in-network’ cost, not necessarily 10% of the whole cost.  Our current infertility clinic (or ‘provider’ as it is also called) is ‘in-network’ so we get extremely preferable rates; for example our new doctor visit it was $190.00, our insurance paid $0, so we paid $0.  This is because our insurance company has negotiated these types of ‘bulk’ discounts in advance with our provider.

Choosing an ‘out of network’ provider can increase overall costs.  There is one other fertility clinic in our area we could have chosen, but is out of network.  It was something we considered, but we went on recommendation and did not think too much about this at the beginning.

Currently my insurance premium is ~$500 a month, plus my employer contributes ~$1100 a month, this covers both Chris and I for all medical expenses including dental and optical.

*As of 10th May 2015

Infertility Awareness: Sharing our Journey

It’s national infertility awareness week soon, 19-25 April 2015.  The theme is “You’re not alone”.  There is a blogging challenge under this theme which I have been thinking about writing.  I asked Chris if he thought it would be a good idea for us to write a joint blog post under this theme and post it onto our personal facebook pages.  After all, it is the making people aware of infertility week – how better to make people aware than to share our journey so far?  But Chris quickly pointed out that this would be too much to share.  We would get more questions like, “Any news?”, we would be asked about our troubles at times when we just don’t feel like talking about it, we would also get the unintentional insensitive thoughts, ideas and suggestions (a great post about this “Pardon me whilst I burst into flame” I re-blogged here).

This all makes me so sad.  Sad because I feel like we should make people more aware of the statistics (how common it is), the hidden suffering, the variety, complexity of infertility problems and the many options/choices of treatment.

Our journey is getting a bit rocky

Our journey is getting a bit rocky

The infertility journey is a rocky wild path, that will throw all types of extreme weather at us, it’s physically exhausting and mentally draining.  We know the peak is high, we may come across false summits.  Some of us may fall down, some of us may find shortcuts (we always hope to find shortcuts!) and sometimes the path simply becomes longer and windier than we ever imagined.  We can ask directions from the experts along the way, they help us to see the path as a gentle winding pleasant route, but they can rarely help when nature creates that avalanche and cuts you off.  If we have our friends with us, they can help us round and scale the new challenges that pop up…they  don’t need to be there all the time, they can relay it up the mountain with us, but surely we are better off not going it alone?

via ferrata2In some ways this journey reminds me of the play we saw last year, K2.  This is a story of two climbers who scale K2 but come across difficulties in their climb, death is near as they fight for survival together.  The two contemplate the meaning of life, family, friends, God and our existential existence.  Ultimately, if there had been at least one other person with them, they all may have survived.  Is our infertility journey like this?  If there were more than the two of us, if we fall, will it be easier to get up and keep going?  Movies often portray climbers that find themselves like the K2 scenario as egotistical and selfish.  But climbers are misunderstood, climbing is more than adrenaline or ego, big climbs are often an exercise of self examination, a chance to get away from the daily grind. I am not saying that in this case infertility sufferers are like climbers.  But what I do wonder, is that we similarly are misunderstood.  We are misunderstood because no one knows we are out here on our journeys.  Should we make more people aware?  How can we do this?

We are out here on this journey because the top is going to be beautiful, it will be worth it in the end, worth the financial burden, the mental exhaustion, the physical pain.  I’ve heard it is amazing up there.  I just don’t want to be alone.  But I’m not sure we are ready to invite everyone to join us on our journey just yet.

Top of the world

Top of the world