Trying not to cry at work is HARD

On Tuesday, after my second beta test, I went home from work early so that I could receive the good or bad news in private.  But my results had not ‘come back in time’, so not knowing when I would receive my results, I went into work on Wednesday.  I was busy running around the office preparing for a one day workshop I was leading the next day when I received the phone call.  You may know already that the news was ‘not good’.  Receiving news like this whilst at work is difficult. My eyes were welling up when I dashed to the toilet quickly, passing one of my senior bosses and trying not to look him in the eye.   I called Chris and had a good old cry – lucky there are not many women at my work to gate crash my pity parade.  Chris said he would come to my work for a hug and he would be there in about 30 minutes.  So I collected myself, and headed back to my desk.  A colleague of mine who had promised to provide me some input to my project report for about 3 weeks decided to tell me he was not able to do it and he was going on leave the next day.  Let’s just say, this was the wrong time to be telling me this.  My attitude initially to him going on leave was….”and…..?????”.  I had waited some time for his input and my report was already late.  I said “No worries…..” in a very sarcastic and mean tone.  Then my friend walked past us happy and bubbly….realised she had just interrupted something and asked if she should go, to which I nodded.  Anyway, I was clearly in a grump.

After 40 minutes of being really pissy one minute, and on the verge of tears the next, Chris arrived at my work.  We had a big hug and cry together in my work car park (parking lot).  Chris stayed for a coffee, and we decided we would work from home for the rest of the day.  I went back to my desk to finish off my preparations for the next day when my colleague (who I had been grumpy to) asked if everything was OK?  So I told him about my phone call. I held back the tears as I said it, but said it was OK, I was going home for the afternoon, which he agreed I should do.  I felt a little bit bad for my pissyness, but I know he understood that it wasn’t personal against him.

Thursday….I kept myself super busy at my workshop all day, I hardly stopped to think about anything else other than work.  It was great!

Today, Friday, I had my third beta blood test.  It didn’t start out great as my appointment was already eating into some ‘compulsory training’ time at work…and of course, the clinic had a waiting room FULL of patients.  I was greeted by a nice enough nurse who I had never met before. I thought I had met them all!!!!  In fact, it was very bizarre, I noticed that the receptionist was someone I had never met before, and all the other nurses I saw wondering around were all new. I wondered briefly if they had done ‘swap staff with another clinic’ day.  V. weird.  Anyway, the nurse who took my blood was pretty distracted by another nurse who was ‘in training’ (who at my last beta test, I blamed for my late result 🙂 ).  They were gossiping, I did not appreciate a lack of attention when I was already upset with having to be there. Grrrr.

After I made into work this morning 40 minutes late, I sat in on about 1.5hrs of pointless training (I am actually already trained, and didn’t know they were going to be covering this same material).  You can tell it was going to be a good day for me….not.  The office was very quiet today, everyone was out on travel or on leave, which was probably a good thing, but I felt lonely.  So I took myself off to a quiet empty meeting room and typed up notes from Thursday’s workshop to keep me busy…but it was slow going, my mind kept wondering to my results.

At 2pm my phone rang, I was surprised because the results weren’t due back til 3pm.  It was the doctor who had done my egg retrieval and  transfer calling with the bad news.  He said my hCG levels were 395 (actually it turns out he was wrong, they were actually 345).  My first response was wow it went up again, OK – I wasn’t expecting that!  But he brought me back down to earth and said he did not believe this would be a normal pregnancy, he would expect an absolute minimum level of 800 by now, and I should stop taking my medications to prevent prolonging the pain (Emotional pain he meant), he did say that I could choose to stay on the meds if I wanted to be 110% sure, but he recommended to stop them. He also told me to arrange a follow up appointment with my doctor as soon as possible.  And that was it.  I actually did not cry, I was just confused.  Sad, but confused.  I stayed in my meeting room and focused on my task at hand, surprisingly I got a lot done in the next two hours.

It is so hard to not cry in front of work colleagues, but at the same time, being there has been a good thing when I needed to divert my mind’s wondering to sad things.

As I left work I received a phone call from my doctor, she started talking to me as if I did not know my results.  However, she was far more informative about my results and what she wanted to do next.  She told me that she agreed with the other doctor I should stop taking the medication, there is a very very small chance (about 1%) that this might be a viable pregnancy, but coming off the meds will not harm the developing foetus if in fact it is developing.  By stopping the medication my body will be allowed to do what it probably would ordinarily have done and let me bleed.  She wants to see me on Tuesday afternoon for an ultrasound and another beta test to be sure I do not have an ectopic pregnancy, although very unlikely, she wants to check.  It is normal if I don’t start bleeding for another 4-5 days, but in the mean time if I get any sharp sudden pains or difficulty breathing to call her immediately.  She also started talking about what we have in the freezer – we have just one blastocyst that was frozen on Day 5 stored away.  They won’t do a transfer with just one frozen, so we would have to do another round of IVF.  Can’t even think about that right now.

As soon as I got home I took off the estrogen patches from my stomach.  It feels good to not have anything stuck there, and we don’t need to think about doing an injection either.  I’m trying to think of the positives here!

I always say it’s never over ’til the fat lady sings….predicting a successful pregnancy outcome

fat_lady_singing

I always say it’s never over ’til the fat lady sings.  But that doesn’t mean I can’t see that fat lady getting ready to get on stage…I can also hear her warming up, running through a few scales too.

So, my suspicions were pretty much confirmed about why I didn’t get my results yesterday.  My results were not good.  And let me point out here that these are not my words, but the words of my nurse.

My hCG levels last Weds were 49 –  just a bit lower about where they should be, but were not overly worrisome…

My results from Tues this week, however, were 126.  They went up!!!! But those of you who are familiar with hCG levels and where they should be by now will know this is not a great number.  hCG levels should double every 2 to 3 days.  What does this mean?  Well my doctor wants me to keep taking my progesterone and estrogen, just in case – there is always a small chance this pregnancy is still viable!! But I have to go in for another beta test on Friday to double check that this pregnancy is, in fact, over.

I can safely say I am no longer feeling cautiously optimistic….I am feeling pessimistic as hell and sad.  If you would like to hold onto hope for us, I gratefully take your strength and thank you for helping to hold us up, but quite frankly when the nurse tells you it is not good, it’s not good.  I understand she is preparing us for the worst.

BUT!!!!! I decided to do a bit of research on what all this really means, what are MY chances?  You know I had to do it, as one of my colleagues told me today – GTS!  (Google That S#*% !!!).  OK, I’m going to get a bit technical here….hang in there if you have in interest in hCG levels (the beautiful pregnancy hormone!!)….


I found a very useful study* that looked at the predictive values of hCG levels for a viable pregnancy 13 days after a 3 day Embryo Transfer (I took my first beta test 14 days after my 3 day Embryo transfer).  My result of 49, according to their model, gives me the following chances of outcome: 45% successful singleton pregnancy, 31% miscarriage, 13% bio-chemical pregnancy, 9% ectopic pregnancy, 3% successful multiples pregnancy.  Well I am glad they didn’t tell me what my hCG levels were last week!

According to these researchers’ analysis, they decided that the cut-off level for predicting a viable pregnancy was an hCG level is 76 IU/I (80% sensitivity)….although this is considerably higher than some other researchers have reported (for example other studies have found the cut off at a similar sensitivity to be: 42 mIU/ml (Qasim et al., 1996); 55 IU/l (Bjercke et al., 1999); and 50 IU/l (Sugantha et al., 2000)).

Wow guys, 76 seems to be a whole lot higher than the others….so do they have credibility in their research?  Well from what I can ‘statistically understand’ and in understanding their research design, it looks solid; their sample size is excellent, some of the best I have seen in articles about artificial reproductive technologies….but I am not a medical professional, so I am totally relying on my knowledge of stats and may be there is something ‘medically awry’ that I cannot see.

If I use any of these models, and consider my hCG level of 49 from last week, these researchers would have told me my chances of a viable pregnancy were always going to be low.

However, there was one interesting point that came out from this study that caught my eye:

In subjects with unexplained infertility, ICSI may result in lower than expected HCG levels (Gold et al., 2000)….The explanation for this was not clear.  Although the early embryo cleavage is delayed in ICSI-derived embryos and the fragmentation of embryos is increased the implantation potential is comparable with IVF-derived embryos.

Even though my numbers have not multiplied nicely….in the back of my mind I am holding onto this slither of hope….holding on that we are the ones in that 5% extreme quantile who defy the norm, and it is because we are unexplained and our embryo was ‘ICSI-ed‘ that my hCG numbers are much lower.

Until Friday…………. :-s

*Pokkeus, P., Hiilesmaa, V. & Tiitinen, A. (2002) Serum HCG 12 days after embryo transfer in predicting pregnancy outcome. Human Reproduction 17(7):1901-1905. Available at: http://humrep.oxfordjournals.org/content/17/7/1901.full

No results today….

Before work this morning I went for my second beta test.

There was a new nurse helping out my favourite nurse.

My results have not materialised today.  The chief nurse called me at 1700 to tell me she has not seen them yet and she will make sure someone calls me tomorrow.

Coincidence?

I mean, how often does this happen???

My twisted mind thought of an alternative once it had gone past 4pm and the reason that I had not yet received a phone call, was that my results have come back not good and the doctor wasn’t there to give me the news with a way ahead.  Why am I so paranoid about this?  Well over the last few days my symptoms have pretty much disappeared.  OK so I know it is early still….but…..I took a test again last night because I was just not feeling right about it all…and the line looked much fainter than the other one BUT they are different brands so I probably shouldn’t really compare.  However it was pretty faint and I would have thought my line be darker by now?

Grrrrrrrrrrrrrrrrrrrrrrrrrrrr….I bet the new nurse messed it up and I am worrying all for NOTHING.

Liebster Award

leibster

Many thanks to Womb for Rent for this award!!! (you can check her out here: https://healthywomb4rent.wordpress.com/)

About the Liebster Award: It is given to up and coming bloggers who have less than 200 followers. The meaning Liebster is German and means sweetest, kindest, nicest, dearest, beloved, lovely, kind, pleasant, valued, cute, endearing, and welcome. Liebster was created to discover new bloggers and welcome them to the blogosphere.

Rules:

Once you are nominated, make a post thanking and linking the person who nominated you. Include the Liebster Award sticker in the post too.

Nominate 5-10 other bloggers who you feel are worthy of this award. Let them know they have been nominated by commenting on one of their posts. You can also nominate the person who nominated you.

Ensure all these bloggers have less than 200 followers.

Answer the eleven questions asked to you by the person who nominated you, and make eleven questions of your own or your nominees or you may use the same questions. Lastly, COPY these rules in the post.

My nominations:

The secret life of Emily Maine:  https://thesecretlifeofemilymaine.wordpress.com/ 

I love Emily’s blog because she tells it like it is.  Emily has been having a tough time of it recently, and yet she is still able to inspire me with how she deal’s with some of the crap that has been thrown her way.  I imagine Emily probably has over 200 hundred followers anyway, but what the hell!

Meet the Hopefuls: http://meetthehopefuls.com/

Heather and Chris BOTH write blog posts…I love that about this blog, infertility is not always just about one person.  I am so hopeful for them that this cycle & soon to be transfer will be THE one.

From Zero to Zygote: https://zerotozygote.wordpress.com/

Nara is a fabulous writer, she is another very open and honest blogger.  I really enjoy her posts, they are not always about infertility.  Nara is navigating the world of infertility in the UK so her points of view can be a bit different too.

Disorderly Love: https://disorderlylove.wordpress.com/

Cesilee is an absolute sweetie.  Life has thrown her a whole box of lemons, and her blog shows just how she has turned them right into lemonade.  She is also another woman who just tells it like it is.  (I am sensing a pattern here 😉 )

My womb to rent nominated some of my favourite other bloggers already….so you should go check out their blogs too: https://healthywomb4rent.wordpress.com/2015/08/18/liebster-award/

The questions I have been given:

1. Who or what inspires you the most?

Actually, it is my husband – Chris who inspires me.  He is not just my husband, but my best friend. Chris is always trying new things, sometimes even in the face of adversity (even though on occasion I wish he would finish the last thing he started!!) His desire to do things differently makes me want to follow him and push myself to new levels I wouldn’t be at today without that.

2. Who is your hero?

I don’t really have a hero, I have ‘heroes of the day’, which I will mentally note as being someone who on that day has saved my ass, or inspirationally put themselves out there in the face of danger.  These are typically my friends, family and sometimes my colleagues.  They don’t know that I call them my hero, but I do :-p

3. What is your proudest accomplishment?

Ummmm, OK so it is work related…but it is a personal achievement too because I faced some quite stressful times I had to overcome.  I was awarded the ‘Member of the Order of the British Empire’, also known as an MBE, for my services in support of military operations (my deployments to Afghanistan).  I am very privileged to have even been nominated for this honour, let alone receive it!!!  My medal was ‘pinned’ by Prince Charles at Buckingham Palace…as you can see from the photo with him I was grinning ear to ear like a Cheshire cat!!  My parents and Chris were allowed to watch and I met some amazing people the day I was honoured.  I was probably the youngest person there at the ceremony, although it is not uncommon for young people to be awarded, I felt so lucky!!!

MBE_3

Not really sure what I was giggling about with the Prince at this point!!

Not really sure what I was giggling about with the Prince at this point!!

The Official 'pose' with my medal! It's quite a beautiful beast that will probably only come out of its box for parades.

The Official ‘pose’ with my medal! It’s quite a beautiful beast that will probably only come out of its box for parades.

4. What did you want to be (as a grown up) when you were little?

A chef!!!!  Which then later turned into a food scientist….but then my school wouldn’t let me study science at A-Levels (16-18 yrs) it’s a long story, but let’s just my aspirations of this ended when I was 14 😦

5. What are your hobbies?

Being outdoors!  hiking, rock climbing (I miss climbing a lot since we have been TTC-ing)  I really enjoy baking when I make time for it.  Some day when I am older I will own my own tea shop that will sell giant home made cakes and people will come just for the cake.  I love learning new things, so I tend to have something going on where I am teaching myself something new.

6. Who would you want to play you in a movie of your life?

Claire Danes – she is so lovely and talented.

7. Do you collect anything?

I have a habit of keeping souvenirs, tickets, cards and brochures of places we visit which will eventually end up in my ‘memory box’….OK so I have lots of memory boxes taking up space right now.  I just can’t bear to get rid of them.  I like going through them may be once a year when we do a clean out.

8. What is your favorite family recipe?

I’m sorry, I don’t have one!!!

9. If you had a warning label, what would it say?

Danger – May Hiccup Unexpectedly!

Since I returned from Iraq in 2007 I have had these random little hiccups that appear from no-where.  Sometimes people think I am sneezing and will ‘bless me’.  I can almost control the hiccup if I am in a meeting, but it takes a lot of effort, so if I know a group of people I will just hiccup very loudly….may be only once or twice.  Even Chris still laughs at my outbursts of hiccups.  I don’t know why it happens, it could be a sign of Post Traumatic Stress Disorder, but that could just be co-incidence.  The other option was brain tumour, but seeing as I am still alive today, it is probably not a brain tumour!

10. What is your favorite family tradition?

I am going to answer this as ‘What is your least favourite family tradition?’.  At Christmas time, my mum has a desire to play a ‘hand bells’ game where each person is given two numbered bells to ring when their number is called out.  Basically this means that a tune is played by bells.  It is the worst game ever.  #SorryNotSorryMum

11. What is the one thing you will never do again?

Go back to Iraq (unless I am called up in my reservist capacity then I won’t have a choice, but I will find every way to avoid going back there!!)

The questions for those I nominate are:

  1.  If a genie came along and offered you one wish to become what you ever you like to be and you were given all the relevant knowledge, training and qualifications tomorrow, what career would you choose?
  2. What is your favourite colour and why?
  3. What is your party trick?
  4. What is your favourite hobby?
  5. If I gave you a plane ticket to anywhere – where would you go?
  6. What is your favourite film?
  7. What helps you get out of a funk?
  8. If you could write a letter now to your past teenage self – what piece of advice would you give to yourself?
  9. If you could only eat one type of ood for the rest of your life, what would it be?
  10. What three things would you take to a desert island with you?

How to get the most out of your doctor

It took me about 24hrs after it was confirmed that I am pregnant to realise I do not know how to be pregnant.  This might seem very weird considering we have been talking about this moment for more than two years now.  Once we started trying to conceive I just of buried my head in the sand.  I didn’t want to jinx our chances by buying a book about it, and I started to avoid all pregnancy related websites and apps after 6 months of failing to succeed in our quest to make a baby.  I know the basics, like smoking is a big no-no, drugs are dangerous, avoid raw meat and reduce caffeine, but really, that is the limits of my knowledge.  So yesterday we went to the book store and bought two books on pregnancy.  One was the standard text book “Great expectations: Your all in one resource for pregnancy”, and the second was “Expecting Better”, beautifully demonstrated in this picture by Sushi:

Sushi, my book keeper

Sushi, my book keeper

This second book interested me because I have always wondered whether Japanese women stop eating sushi, or French women stop eating brie when they are pregnant.  Really?  I don’t think so.  I hope that this book will enlighten me to what the conventional wisdom really means.  But when I started reading the first chapter I didn’t need to go much further with it to be completely satisfied with my purchase.  Why?  Well the author, Emily Oster, is not so different from me, she was not happy with what her doctor was telling her.  I realised that my experience with my fertility clinic’s doctors and the feeling I had that there was a poor lack of communication.  All of this was because I was not asking the right questions.  I didn’t know I needed to ask them.  And this is silly because all along I had the key questions in the back of my mind…I use them everyday at work!!!

In my job I help leaders make decisions every day…I do this by presenting the evidence, the facts – for and against a decision – I do some analysis on the data that supports the decision, I try to be unbiased and objective in my analysis, and then I present a recommendation to the leader on the best course of action.  The leader doesn’t always go with my recommendation, but I have presented them with the facts and figures to make their own mind up.  Sometimes I feel a bit hurt, but then I remember, I am not the one taking the risk.  So when it comes to our healthcare and doctors, WE are the decision makers.  We need to be presented with the arguments for and against, and be told what the supporting evidence is.  WE are unique in many different ways and the decisions we make will be unique, blanket guidelines are not always appropriate for everyone.

I think a good example of this is when we were told we should do ‘ICSI’ because of our unexplained infertility.  We didn’t ask the questions:  What are the pros of ICSI?  What are the cons of ICSI?  What are the improved success rates with people like us? (i.e. what’s the supporting evidence/data?)   We were not armed to make a decision, we just went with what the doctor said, and in the back of my mind I felt like I had not been given a chance to make a decision.  I did actually do a lot of this research myself, but it would have been better if my doctor would have told me – after all I am not the medical professional, I just have the fortunate ability to interpret statistics from studies and experiments.  So although I was finally happy with the decision to do ICSI after my research, something inside me was niggling about our doctor’s communication.

Another example is when it came to our embryo transfer.  We were told that it is the standard practice at the clinic to transfer 2 embryos on day 3, unless there were over 6 fertilised embryos then maybe we would be a candidate for waiting to Day 5 to transfer 2 blastocysts.  We did not ask the questions: what are the pros of us waiting to Day 5? What are the cons of us waiting to Day 5?  What are our personal chance of success with 4 fertilised embryos compared to if we had had 6? (i.e. what’s the supporting evidence/data?).  Again, I did a lot of this research myself.

I could go on with other opportunities throughout our infertility treatment where I could have asked these three simple questions that would have revealed the knowledge I needed to feel like I was in control of making a decision.  We rely on doctors to make the decisions for us…and most of the time I am happy with that fact, but there were times that I felt like we should hold that responsibility for a decision.  When it comes to my pregnancy I want to be able to ask these questions to my doctors and nurses so I can take the responsibility for making some of the big decisions such as prenatal testing or birthing plans.

Emily Oster suggests reading the book “Our medical mind: How to decide what is right for you” by Jerome Groopman and Pamela Hartzband.  I think I might try it, and I’ll let you know how it goes.  Has anyone read this one?

In the meantime my friends, next time you are in a consult with your doctor, remember these three simple questions to help you make the best decision, for you, and get the most out of your doctor….

  • What are the pros (for me)?
  • What are the cons (for me)?
  • What is the evidence/what are the chances (for me in particular)?

IVF DIARY VOL I: 18-20 Aug 2015

IVF_Diary_Vol1Medication(s) administered and dosage(s).  Progesterone 1ml, vivelle dot estrogen patches 0.1mg x2.

Medical procedures undertaken. Beta pregnancy test.

How do I feel today? I have written a separate post about this today as I felt that my feelings should be captured in their own space.  To sum that post up…I’m cautiously optimistic.

What are my symptoms? Sharp pains, sore back and I can feel the nausea coming.

How does Chris feel today?  He too is cautiously optimistic too and has an occasional outburst of tears welling up. I love how he shares his feelings with me openly and honestly.

Any results? Maybe I should have put this one higher up.  Yes – I am pregnant according to my beta test.  I don’t know my hCG levels yet, my phone is playing up so I can’t access them at the moment.  But I know that the doctor is not concerned about them. Yey 🙂

What’s next?  Second Beta test scheduled for Tuesday next week.

Weight. Holding at a reasonable level.

Waist.  Getting smaller!!  But not for long, hopefully.

Boobs. Getting bigger!!

Hours of Sunshine 🙂 I got some last holiday sun yesterday as it was my mum’s last day in Virginia, so we headed to the beach for some dolphin watching.

150820_IVF1_Stats

This concludes Vol 1 of my IVF diary and this will be my last ‘diary entry’ (Of course I am blogging still – duh!!).  It has been a roller coaster of emotions, I have learned a lot.  I will share my ‘lessons learned’ of this cycle later this week.  But overall, it’s not a bad note to end on 🙂

*Notes.  I take First Response Reproductive Health multi vitamin gummies (pre-natal) and CoQ10 200mg gummies daily.  NSTR = Nothing Significant To Report.

What is cautiously optimistic?

What do people mean when they say they are cautiously optimistic?  According to the Macmillan dictionary it is defined as:

Hopeful about something, but recognising the problems involved.

I think to describes nicely how I have felt about trying to conceive since we decided to make the leap towards becoming parents.

I also like this image – they say a picture paints a thousand words.  Sometimes it has felt like there is a storm out there and our umbrella is going to be whipped away, but most of the time it is just like this picture.

Optimism

Cautious optimism represented by an image

But for me – this picture paints accurately what cautious optimism looks like for me right now…

Two pink lines

Two pink lines

Yes, my dear friends, this is my blue sky approaching!  I took a pregnancy test the night before my beta blood test.  I was very spontaneous about it.  Chris came home from work, he sat down and said “So…injection or test first?”.  He threw me off guard because I had been so good at not thinking about using a home pregnancy test, it was just a surprise he said it so nonchalantly.  I laughed nervously and exclaimed…”No!  Don’t be silly you have to wait!”.  And to that, I decided spontaneously to dash upstairs and pee on the one first response home pregnancy test I had left in a drawer.  It took seconds for that second pink line to appear, it appeared before I even had a chance to put it down on the work surface.  Well that was not what I was expecting!  So I left it next to the sharps box for Chris to see when he would start preparing my injection for the evening.  I dashed back downstairs (it had only been 2 minutes) Chris had no clue what I had just done.  And so we started the ritual of the progesterone injection.  We went upstairs with everything needed and I lay down on the bed as if preparing myself for the injection….when Chris shouted out from the bathroom – “hey there is a pregnancy test here??” in a very confused manner.  After a second or two of blank face, he almost cried, hugged and kissed me.  We talked about how it was not guaranteed and we will find out the next day if this was for real or not.  So we decided not to tell my poor mum who was downstairs at the time – oblivious to what was going on!!!

The next morning, my mum and I went to the clinic for my beta blood test.  The nurse asked me if I had taken a test yet…I looked at her and smiled…and the nurse said ‘yey!!!’.  I was busted – mum had overheard the nurse ask….so I had to tell her what had happened the night before!

And so I waited for the phone call from my doctor.  When I saw the number pop up on my phone I took a big breathe.  It was actually not my doctor but one of the other doctors who had been doing my ultrasounds.  I answered and she said “So….do you feel pregnant?”  (What a weird way to start a phone call!!!)  I said “maaaaaaybe…..” nervously wondering if this was a cruel joke!  And she said “Yes! Yes you are pregnant!!!  Your numbers are great…..you need to keep taking the progesterone and estrogen…we probably want to see you again next week for another test….blah blah blah” (-is all I heard after that!) So that was that.

We are pregnant!

Can I put my umbrella away yet?  Of course not.  Some people may read this and think I am ungrateful or maybe even conceited, but they probably are people who do not understand what infertility can do to the mind.  I’m not sure at what point in this process I will take ‘Congratulations’ with a smile.  Please understand that I appreciate your kind thoughts and sentiment, I know you are really excited for us….just don’t worry if I don’t respond with an excited smile.  Getting a positive pregnancy result after IVF is an awesome step in the right direction, I feel so lucky that we have got this far, but I can’t get excited about having a baby just yet.

I am cautiously optimistic about this exciting step…I’m just hoping it isn’t a false summit.

On being PUPO at P-1 Day (Prove Day)

I officially have the status of being Pregnant Until Proven Otherwise (PUPO).  I can ‘enjoy’ this status for about 24hrs longer because tomorrow morning I have my first ever beta pregnancy blood test.  What is a beta pregnancy blood test?  This is a blood test that will reveal ‘quantitatively’ the amount of hCG (Human Chorionic Gonadatropin) in my blood (hCG is the hormone that is produced when a woman is pregnant).

The last 24 hours have been interesting.  Yesterday I thought my period was about to happen.  I discovered a bit of dark brown spotting….I freaked out.  Then I thought perhaps implantation bleeding?  But surely this is way too late for implantation bleeding and unlikely to be possible??!  (Remember I have an upside down uterus so perhaps the blood from the implantation has taken a while to ‘gravitationallly’ find its way out! Perhaps it is not impossible?!?!)  But then I had horrible aches that felt like a period for several hours afterwards.  I felt that it was all over.  I went to bed last night pretty much expecting to wake up to my period flowing.  I even got upset when Chris told me I should go to bed with a pad and knickers on.  I shall not surrender!!!! But no!!! Cruel Aunt Flow teases me!!! Nothing has shown itself since.

Last night I had a weird dream.  I basically took three different home pregnancy tests.  The first was positive, because I couldn’t believe my eyes, I took a different brand…and it came back positive.  So Chris made me take this crazy test.  The results were really hard to interpret.  The lines looked like inter-twinned ladders and required knowledge of matrix calculus to understand it, and so we argued over whether it was positive or negative.  It was positive.

Today, I have been aching like my period is about to arrive, however, I have been experiencing those sharp pains again like in many of my other previous 2 week waits.

The problem with being PUPO is that the progesterone injections and estrogen patches I am being ‘topped up with’ each day to help make a cosy and attractive womb to Huckleberry and Huckleberina are probably causing all of these symptoms.  So I am not going to think too much about it all….I remain as I mentioned in my previous post – indifferent.

Lots of people have been sending their love and support over the last few days, and for this we are truly appreciative for the kind thoughts.

So….all that is left to do now is…Prove!  I’m excited, nervous and scared all in one breath…or maybe it’s just the drugs!!! Who knows?!?!

Ohhhh just one last thing I will levae you with to make you smile….here is the spectacular bio-luminescent plankton we observed on Sunday.  Chris did a great job of the pics! I hope we didn’t use up all our luck this epic weekend of fun!

the bio-luminescent plankton

the bio-luminescent plankton

bio1

Nurse Mummy to the Rescue

It dawned on me over a week ago that when I go for my work trip & mini day break with mum up to DC tomorrow, I will not have my handy man (AKA hubby) with me to administer the progesterone in oil injection.  Uhoh, I worried that I would not be able to do it on my own – have you seen the size of that needle?  It’s 3 times the size of the one that is injected into my abdomen!!  The first time I tried to inject myself was a complete failure, I froze to the spot.  There was little chance of me administering this 1.5″ long needle myself – in my buttocks.  I thought I was going to have to cut our trip short, until I realised that my mum could do it!!!

Now – my mum is a self admitted needle phobe.  Fortunately, she is only a needle phobe from needles being administered to herself.  She works in a school and has administered an epi-pen to a child before.  The challenge to inject me with this ginormous needle still was not insurmountable.  So we got mum into training ASAP.  Once Chris had tried administering the injection on me once, he then started training my mum.

First night of training – observation.  Mum observed Chris and he explained every step he took.  Here is a simple 10 step programme.

  • Step 1: Prepare items: 1.5″ 22G needle, progesterone in oil, gauze, x2 alcohol swabs, sharps container, ice pack for numbing, heat pad for massaging afterwards.

Progesterone_kit

  • Step 2: Dani lies face down on bed and Dani ices the buttock that will be injected (change from L-R buttock every day)
  • Step 4: Prepare medication: take lid off progesterone bottle, alcohol swab top, extract 1ml of progesterone using needle, check for air bubbles.
  • Step 5: Alcohol swab injection area on buttocks, Dani looks away :-s
  • Step 6: Breathe!!!
  • Step 7: Pull skin apart at injection site and hold down.  Let Dani know you are going to stab her 3-2-1: stab!
  • Step 6: Pull back on needle slightly to check for blood, if air bubble is seen, all is good
  • Step 7: Inject progesterone
  • Step 8: Remove needle and place gauze on injection site & massage.
  • Step 9. Dani continues to massage injection site area with heat pad for about 10 minutes.
  • Step 10: Go have a cigarette to calm your nerves (mummy, not Dani!!!)

Second night of training – prepare medicine with Chris’s guidance, observe Chris injecting again.  Practice injection using lemon and vegetable oil to get feel of how hard it needs to be ‘darted’ into the skin.

lemonslemons2

By the way – when life gives you lemons…..stab em with a needle and inject vegetable oil. Waaaaay more fun than making lemonade!!!

Third night of training – prepare medicine without Chris’s guidance (Chris observes), Chris injects again while observing.  Continue practicing with lemon.

Fourth night of training – prepare medicine.  Inject with Chris’s guidance.  (Success!!! Mum has a little lie down with me afterwards, she was nervous, but I hardly felt a thing!!)

Fifth night of training – on own administer everything without Chris’s guidance, Chris observes and only interrupts once to slightly change the grip on the needle.  Mum is now fully Qualified!

D-Day: She did it!!!! Mum did this all on her own without any help from me at all.  I am so grateful and proud of you Mum!

I tried practicing with the lemon against on my bottom to see if I could do it my self just in case – and it is possible on my left side, but very difficult on the right side, so despite my needle phobia I would probably still need help to inject on my right side.

After Mum qualified and passed her 5 night training plan, she told me that throughout this she has learned that the you can overcome anything for your children. Awwww. Thanks Mum, I love you lots and can’ thank you enough for overcoming your fear to help us out.

Facebook – the good, bad and ugly

Hi, my name is Dani, and I have been a facebook addict for about ten years.  I don’t want to give it up just yet, but we have been having a love-hate relationship recently.  Let me explain the good, bad and ugly of facebook to you.

The GOOD.

On Thursday’s egg retrieval we did something very random and spontaneous.  After Chris put his ‘egg packing uniform’ on, the nurse asked if we would like a photo of us together. After the nurse snapped a few of us posing together and left chuckling at us (in a nice way), I asked Chris to strike a pose for me in his beautiful attire.  (I posted pictures of him posing yesterday) I laughed about putting it on facebook.  He said, go on then!  I wasn’t quite sure if he really meant it.  I pointed out that people would ask why he was wearing it.  How would you respond to that?

Chris has been quite adamant in the past that he does not want to post anything on facebook about our infertility, he doesn’t want to share it with the world, and I respect him for that.  The only time I have posted something on facebook was when he gave me my first injection on Valentines day.  The post was vague enough that only one or two people asked us questions about it.  I also shared an article about infertility awareness week, I had only one question about that one.

So I sat there with the photo of the two of us in our surgery attire that the nurse had taken and pondered what to write along with it.  I crafted something positive, short and to the point.  And then I cried.  I was about to chicken out of it, but then a thought popped into my head, what the heck – why should we have to hide this big life event?  So I pressed ‘Post‘.  20 seconds later my phone vibrated, and again, and again, and again.  I was nervous to look at it.  What type of comments would I get?  Would people just press like and be too afraid to comment?  I was starting to feel sick to my stomach.  Here is what I posted:

facebook_IVF

After the transfer procedure was completed, Chris then posted a picture of our embryos from his own facebook account “Apparently babies come from raspberries”:

facebook_IVF2

Our first post received 232 likes and 73 comments wishing us love and luck.  My phone did not stop buzzing all day yesterday.  And then came the personal private messages.  Statistically speaking, infertility is likely to affect about 20 couples out of this group of people.  Of course friends we know who had gone through IVF contacted us either on facebook or privately to wish us luck and offer a hand/advice if ever needed, but then there was some of our friends who we discovered had been silent about their treatment for infertility who messaged us too.  We had private messages of inspiration and warm wishes.  We were astounded by this response and feel so much love filled in our hearts.

I cannot possibly feel negative for a while after all this support!!!

It is difficult going through infertility when a number of close friends and family are so physically far away.  Facebook provides us with the ability to stay connected with them – sure there are other means to do this (Skype, whatsApp, Email etc), but it allows us to deal with the timezone differences and still feel connected.  This to me makes facebook a GOOD commodity in helping us build friendships that help carry us through the bad times of infertility.

I can imagine some people reading this will be thinking we are crazy for posting what we did, but it wasn’t something that came naturally, rather it is something that has taken time to learn to be comfortable with.  I started to take the stance of not hiding our infertility a few months ago, if moments came up in conversations I would talk about it (awkwardly), and now I feel a lot more comfortable talking about it than I used to, I don’t whisper at work anymore and I may even start a conversation about it.  The underlying point is that it has taken time to become comfortable and not ashamed of what we are going through.

The BAD

By posting what we did before the embryo transfer, we have opened up our hearts to a much wider audience, and if things don’t go well for us it’s going to be hard to deal with so much condolence on our hands.  We are now vulnerable.  We are also vulnerable to comments and unwelcome advice that drive you mad when you are going through infertility.  We can’t filter these comments out from facebook.  We shouldn’t just de-friend someone because they made a hurtful comment that they didn’t realise they were making.  But we can de-friend people who turn out to just not be real friends or purposefully spite us with hurtful comments, at least we can block them from that part of our lives.  Fortunately, I have never experienced anything spiteful, malicious or hurtful regarding our infertility.

The other thing about facebook that is just plain BAD are the pregnancy announcements and baby photos that plaster your newsfeed.  For some people suffering from infertility, this should probably be in the UGLY section.  But I actually don’t mind pregnancy announcements, especially if they are close friends.  I do get a little bit tetchy when ultrasound photos are incessant, but you know what I can do?  I can edit the facebook options so that I don’t see their posts unless I want to or choose to go to their facebook page when I am feeling good to see what they have been up to.

The UGLY

For me, the ugliest thing about facebook are those targeted ADVERTS.  Pregnancy, baby clothes, mom sites, nappies….aghhhhhhhhhh JUST GO AWAY!!!!  I can cope with a pregnancy announcement any day over this crap.  You know what also gets my goat?  THE WORST.  Targeted adverts about infertility.  Clearly I browse infertility websites, so why does any infertility website think it is OK to use targeted advertising about infertility to appear on my facebook feed?  Do their marketing people know anything about infertility?????????? Do people with cancer get adverts about cancer? Do they want to see adverts about cancer, just as they have gone in to remission?  I guess it is an individual’s perspective about whether this type of advertising is useful or not.  For me, this is just UGLY.

I wonder a lot about the algorithms facebook use to determine if an ad should be placed on my page.  They use data from your profile, such as location, age, gender, interests, connections, relationship status, languages, education and workplaces.  That is all pretty basic information.  However, there is more personal information that facebook uses such as your listed likes and interests, pages you like, apps you use and other timeline content that you have provided.  I decided to see what kind of information advertisers need to provide to facebook, and it is indeed seemingly innocent.  Here is what I found:

facebook_ad

Creating a facebook advert: infertility is an interest that can be directly targeted to a user

The interest “infertility” is possible to target an audience to, these are people who have liked content relating to terms such as PCOS infertility (audience 246,280), unexplained infertility (205, 540) or male factor infertility (31,960) or even resolve (22,850). ( By the way, I found the potential audience numbers really interesting – note how low male factor infertility is? )

Fortunately, I was educated a couple of days ago how to stop this from happening on your facebook page.  Nara from the Zero to Zygote blog recently posted how to stop adverts (in fact any type of advert) that you do not like appearing on your facebook feed.  You can check out her handy guide here. I am so grateful to her for this post, as soon as I read it I immediately went ahead and clicked on a stupid pregnancy ad I have been receiving over the last few days and changed my setting to block ads like that.

The second question is whether facebook uses data other than what is found on your profile and your actions on facebook, for example when you visit infertility blogs, forums and IVF clinic pages?  The answer is yes, like many other websites, cookies and trackers are used to directly target the ads you see on your facebook page.  Some people may call this spying, marketers would call this targeting.  You may think that you can just turn off cookies and trackers in your browser, it’s easy to do, but facebook will not let you use certain features if you do this.  However, you can limit it by following the instructions here:  http://gizmodo.com/how-to-stop-facebook-from-sharing-your-browsing-history-1589918083.

Hopefully, for me now, the UGLY has just gotten a whole brand new makeover (thanks Nara!!!), the BAD has been put on the naughty step for a time out, and facebook has become more of the GOOD that I originally signed up for (thanks Chris!!).

Do you have any good, bad or ugly stories about infertility and facebook to share?