reblog – Let’s Break The Internet With Infertility Awareness! —

I totally missed Day 5 of the Bloggers Unite Conference – bad Dani!!! I was exhausted driving back from DC yesterday (I know, excuses excuses!!) :-s

Day 5’s topic is about #StartAsking for insurance coverage.  As I have the best insurance coverage, I think, in the whole of the US (I have a worldwide insurance policy) I can talk about the benefits that everyone should have available to them – I have coverage for infertility diagnosis and infertility treatments (IUI, IVF, ICSI etc), including medication – I even have coverage for Genetic testing.  There is no $$$ limit, but I can only have 6 life time IUIs and IVFs. It’s quite amazing really!  So I have already used up half my life time allowance.  I still have to pay the 10% copay…but it is no comparison to those couples who have to pay the full amount.  Infertility is stressful enough as it is without the added financial burden and bills to track and pay.  It makes me mad that infertility treatment is seen to be ‘an option’ like cosmetic surgery is ‘an option’.  You can read more about this at missconceptioncoach.com below

In a perfect world, the tens of thousands of women and men suffering from infertility who consult reproductive specialists every year would know that their medical treatment would be covered by their health insurance. Infertility is, after all, considered a disease as stated by the World Health Organization. Yet the establishment of an “Essential […]

keep reading more here…via Day 5 – #niaw, Bloggers Unite Conference – Let’s Break The Internet With Infertility Awareness! —

Reblog – Start asking friends and family for support —

Day 4 of the Bloggers Unite Conference at missconception.com!  I don’t know who this lunatic blogger is, she is harping on about something for infertility awareness week…..oh wait….it’s me! I’m excited to be part of the bloggers unite conference this year, and very grateful to Miss Conception for hosting it!

I discuss how we opened up to our friends and family about our infertility journey and yet had never actually asked for support from them.  I assumed I didn’t need it.  But I was wrong. People find it hard to know how to help their infertile loved ones, so if you ask, they will leap, I have no doubt about that as we have experienced.  I suggest ways you can ask for support from your friends and family.  You don’t need to be as open about your infertility journey as we have, but knowing when and how to ask for support will help get you through those tough days. Click the link below to read more!!!  XXX

Hi! My name is Dani. My husband, Chris and I, have been trying to conceive (TTC) since December 2013. We were diagnosed with ‘unexplained infertility‘ in January 2015. I decided to blog about our journey of TTC as I quickly realised that talking to friends and family about our situation can be difficult. It can be hard for them to […]

…..read more of my blog post here via #niaw – Day 4, Bloggers Unite Conference – Start asking friends and family for support —

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Reblog: Be your own advocate. Listen to your gut. Know your body —

Day 3 of the Bloggers Unite Conference and Bri from dreamingofdiapers.com explains the importance of being our own advocates and asking questions to our OBGYNs and Reproductive Endocrinologists.  For me I certainly have learned that Doctors can get into their set ways of thinking and have certain biases (I wrote about this a while ago), sometimes they simply forget you are first time IVF patient, generally forget things, or apply a ‘catch all model’ to your infertility treatment.  So asking the right questions can help us all move forward on our path to our long desired babies.  Bri is currently pregnant with her sister as a gestational carrier/surrogate, she has some amazingly interesting perspectives… so you should go check out her blog! But first read her post for National Infertility Awareness Week link below….

There are so many topics that we could talk about with the hashtag #StartAsking but my focus will be about being an advocate for yourself and asking questions to your ObGyn or Reproductive Endocrinologist. When you are trying to have a child, many questions go through your mind. Some of you ask and some […]

continue to read more here…. #niaw Day 3, Be your own advocate. Listen to your gut. Know your body —

Reblog: Bloggers Unite Conference, Day 2 – Lawmakers and Legislators

Day 2 of the Bloggers Unite conference! Whoop Whoop!! Here are my thoughts on today’s blog!

Denise blogs for National Infertility Awareness Week about how we should #StartAsking our lawmakers, legislators and researchers to spend more time, money and effort to find ways to improve infertility care.   She makes some really interesting points in her blog post – currently only 10 clinical trials related to infertility are listed on www.clintrials.gov in comparison to 4126  trials related to breast cancer (BTW – the statistics for breast cancer is 1 in 8 women will develop it at some point in their life time. Yes – I know infertility doesn’t kill! But in terms of trying to understand a disease it is an interesting comparison of levels of research). Denise also struggles with unexplained infertility – great minds think alike! (See my post from yesterday) Take a look at her post below….

Three years, three surgeries, two doctors, four donors, one biospy, eight IUIs, one fresh IVF cycle and one frozen embryo transfer later and we are still on the road to parenthood. We knew this was not going to be easy but never in my life did I believe it would be this difficult. As we […]

…continue reading…. #niaw Bloggers Unite Conference, Day 2 – Lawmakers and Legislators —

Thank you to Chiemi at www.misconceptioncoach.com for organising the conference! It’s been great to meet other like minded bloggers 🙂

Why can’t we make a baby? #NIAW

Why?  Why me?  Why can’t I make a baby like all my other friends and family? I have so many questions about why after almost 2.5 years of trying to conceive and failing miserably, month after month.  What have I done to cause this?  Why won’t my body just get pregnant? What am I doing wrong?

It’s human nature to want to know why things happen.  But these are the type of questions that run through my head round and round, continuously ever since we decided to grow our family.  I have yet to answer any of these questions.  It is exhausting.

Chris and I are 1 in 8 couples of child bearing age in the US that struggle with the disease that is infertility.  We tried the good old fashioned way – sex – for 11 months before we went to seek specialist help from a reproductive endocrinologist doctor after we discovered that Chris’s testosterone levels were “below normal”.  It turned out for us that testosterone levels do not actually matter that much when it comes to fertility.  Chris actually had super sperm, and lots of them!  But it did lead us to start the typical tests for diagnosing infertility.

We thanked our lucky stars that all our test results came back normal – there was nothing seriously wrong with either of us.  In fact, we passed all our tests with flying colours, we were top of the class!  But this put us into the category that 20% of infertile couples are diagnosed with – unexplained infertility.  This meant that the doctors could not tell us why we hadn’t been successful so far in trying to conceive the way they teach you at school.  We were about to embark on a journey that was going to take us beyond what they taught us at school – we were going to try to get pregnant with medical assistance.  We were heading into the world of the unknown.  We knew little to nothing about infertility.

At first it was difficult to explain to our friends and family why we were seeking treatment, because there was nothing ‘technically’ wrong with us.  The infertility was inexplicable!  It was embarrassing, it was awkward to explain.  So this is why I started this blog, to help us get over this difficulty in explaining what we were doing and why, as well as helping to explain our feelings about our disease in general.

Unexplained infertility in someways has been a good thing – there is always hope that this treatment will work.  But ultimately it is difficult to accept that there is just no known reason that this isn’t working for us.  In some cases, going through medically assisted treatment for infertility can reveal the explanation of a couple’s infertility.  But in our case, after 3 IUIs (Artificial Insemination) and 3 cycles of IVF (In-Vitro Fertilisation), 1 suspected ectopic pregnancy,  and over $90k of medical bills we are none the wiser as to why we do not have a baby in our arms yet.

Conception is a wondrous act of nature, but it is also an incredibly complex process  – there have to be many stars in line for a healthy baby to be born.  For something that is the very basis of our human race’s existence, we still know very little about the disease that prevents us from growing our families.  It’s incredible, right?

I am currently in the dreaded two week wait of our third (and final) IVF cycle.  If this cycle fails, apart from being devastated, I do not know how we will ever be able to move forward without knowing why this has happened, why medical treatment didn’t work for us.  Our infertility will never leave us.

For National Infertility Awareness Week (NIAW), the national non-profit infertility organisation Resolve is promoting this year’s theme #StartAsking.  The theme is about promoting the questions that we want to be answered, whether this is asking for our Employers to provide insurance coverage, asking for legislation that supports family building options or asking our friends and family to support us.  For me, the one question I have and want to raise more awareness about is to:

 #StartAsking for more targeted research on unexplained infertility.

Perhaps if we can understand more about how or why some couples are infertile, then better focused medical interventions can be developed to defeat infertility.

I want answers!!!! But we won’t ever get answers if we don’t talk about infertility and unexplained infertility.  It shouldn’t be a secret.  We can do this by speaking openly about infertility, by getting organisations like Resolve to help raise our community’s voice and build awareness.

If you would like to know more about infertility, please visit Resolve.org.

If you would like to help, you can contribute by fundraising or donating for Resolve.  Or just comment below with your questions and thoughts to join in the discussion!

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IVF Diary Vol III: 20-24 Apr 16

Medication(s) administered and dosage(s). 8DP5DT (8 days past 5 Day Transfer)  PM Progesterone in Oil 1ml Intra-muscular injection, vivelle dot estrogen patches 0.1mg x2.

These injections do not get any easier!! Fortunately (for me) the past two evenings Chris has been doing the injecting part.  Kudos to him.  It doesn’t get any easier for him.  He had a nervous laughing fit the other night after he pierced my skin and was starting to inject, and I was trying hard not to laugh at him (I didn’t want my muscles to tense up or to shake the needle around as it was inside me!!!). Nope, it doesn’t get easier.

Medical procedures undertaken. Nil!

Any results?  Apart from finding out I needed to be taking iron supplements, I wrote a post about that and had a brief ‘freak out’ moment of feeling like maybe I had a chance to improve my egg quality.  But that was silly, and I realise that now.  I did go out and buy some iron supplements.  I bought it in liquid form because I find the majority of pills hard to stomach (there is something about the pill lining they use that makes me puke them back up).  Basically the supplement tastes like I am swallowing a tablespoon of blood. BLEUGHHHHHHH.

What are my symptoms?  Yesterday I struggled with my OHSS symptoms.  We had a nice day out watching a parade and going to a festival that celebrates NATO.  But it’s really the first time I have been out and about for a significant amount of time not sitting down.  We then went to the shops and after about an hour my stomach was in pain.  I just needed to sit!  I was also incredibly thirsty all day, nothing could quench my thirst!!!  Last night I got up to pee FIVE times!!!! I also found it hard to get in and out of bed each time because of my hugely bloated painful tummy.  I am a little worried that my OHSS has done a U turn and rather than getting better is now getting worse.  This could mean I am pregnant though because OHSS can get worse as my body starts to produce hCG after the embryo implants.  It’s something I’ve been told to watch out for….If things don’t subside today then tomorrow is my last chance to go in for an ultrasound before I am supposed to be back in DC – I don’t want to be getting worse whilst I am away from home!  I am going to take it easy today though, maybe I just over did it yesterday.

How do I feel today? It has been really hard not to pee on a stick the past few days.  Especially yesterday with my symptoms developing as they were I just felt like I might see a positive!  And so now I have my expectations set high, I’m terrified to be wrong and see a blank white space on that pregnancy test.  So I haven’t done it.  I looked back and compared my symptoms from cycle 1 (BFP – positive) to cycle 2 (BFN – negative) and actually I seemed to have experienced similar symptoms in both cycles.  I guess it is that damn progesterone and estrogen making me feel like this!

Chris told me that if this cycle fails he wants to wait several months before transferring our final frozen embryo.  Which I understand why he feels like that.  But I feel differently about it.  I said we should have this conversation later and not now.  I need to be positive, I need to be hopeful right now, I want this to work so so much I can’t even think beyond this.  Last cycle I was OK with thinking about the future and what’s next because I knew we could always give IVF another try.  This time for me is different.  I know there isn’t a next IVF.  I know this to me is all or nothing.

 What’s next? Friday is test time – in between all that I have a work trip to DC to occupy me and keep me busy!  This does mean I will be doing more injections on my own 😦 and Chris will be on his own in the house alone this week when perhaps we really need each other right now.

The Final Countdown!!! 

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*Notes.  I take First Response Reproductive Health multi vitamin gummies (pre-natal), 5mg Melatonin at bed time and CoQ10 200mg gummies, and  Pur-absorb iron supplements daily.  NSTR = Nothing Significant To Report.

National Infertility Awareness Week #StartAsking

It’s almost National Infertility Awareness Week here in the US, 24-30 April 2016.  I don’t know if there is an equivalence in the UK, Canada, Australia, NZ or wherever you are in the world, but seeing as my blog lives in an international community I believe it should be an International Awareness Week (So doth Dani declares!).  So join us!

Here are some ways you can ALL get involved to help spread awareness of this disease, whether you are infertile or an infertile loved one’s supporter.

Learn more about infertility.  Because knowledge is power.

If you are family or a friend of an infertile loved one then change your facebook profile picture to this.  You can download the picture from here.

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If you are 1 in 8 couples you can change your facebook profile picture to one of these:

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or my favourite…..

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Let people know that infertility is a disease by using the phrase, “the disease of infertility” whenever you talk or write about infertility.

If you don’t know what to say to someone who has infertility, then you can read this article: “25 Things to say (and not to say)” from Resolve.  If you are finding that some friends just don’t understand your infertility and are saying unintentionally hurtful things – share this link with friends and family so you can help them to help you.

Infertility is a couple’s disease, there is a mis-perception that infertility is a woman’s disease, this is not true.  So don’t forget all the men who are affected too.

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So what am I doing for National Infertility Awareness Week?  I have been prepping some microblog posts, one-a-day, on the subject of this year’s theme #StartAsking – I will also be posting on my personal facebook page – eeeeeeek!!!!

I am participating in Miss Conception Coach’s Bloggers Unit Conference!!!!  Watch this space for my article!  You can follow her on wordpress and see all the inspiring articles for the conference, her instagram is @missconceptioncoach – she posts lots of beautiful and inspiring words of wisdom 🙂

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My local infertility support group is running an information desk at our local clinic throughout the week, and I will help man it for a few hours to make people aware of who we are and what the support group does 🙂

As part of Resolve’s Advocacy day some members of my local infertility support group are visiting Washington DC to talk to members of congress about important family building issues.  I can’t go because I have to work (Boooooooo) but they will be taking my letters I have written to our Senators and Congressman with them!

And of course I will be doing all the social media stuff too.

 

OK that’s a lot for now!!!! TTFN!!!

 

Mega Communication FAIL

I am upset at myself….Chris told me it doesn’t matter, but I can’t help but feel like an idiot about it.

2 months ago I went to my normal physician and had my annual workplace medical (a requirement from my work).  Usually my physician calls when she gets my results and says everything looks good!!  This year she didn’t call me…but I could see my test results online and everything looked OK to me so I just forgot about it.

Roll forward to this evening and I log into my health portal to check some test results after a fellow blogger asked me about my AMH levels.  As I was looking I noticed that my physician had added a note to my most recent work place medical test results that said: “Your labs look good.  You are only slightly anemic.  Just take an over the counter iron supplement if you can.  Good luck!”  (She added good luck because I told her about our upcoming IVF cycle).  So all this time….I could have been taking an iron supplement and I haven’t.  I already take prenatals that has extra iron in it so what would my results have been if I hadn’t been taking this? Ugghhhhh.  I’m annoyed because I wonder if this could have made a difference to our embryos?

My doctor in the UK prescribed me folic acid supplements.  A quick google search and all of this and being slightly anemic is likely to be related to my Irritable Bowel Syndrome.  I wonder….is it about time I go and get all things associated with my bowels checked out again after the IVF?

I can’t help but feel frustrated that I didn’t see this message from my physician earlier!  But at least I have seen it now and that is the important thing (thank you Leslie for prompting me to log into my account!!! I’d never have seen the message for probably another 10 months!!).

IVF Diary Vol III: 17-19 Apr 16

Medication(s) administered and dosage(s). 3DP5DT (3 days past 5 Day Transfer)  PM Progesterone in Oil 1ml Intra-muscular injection, vivelle dot estrogen patches 0.1mg x2.

Injecting into my right side is much harder than my left side – even though I’m injecting with my right hand on the right side – it’s just that I have more flexibility in turning my torso left than I do right.  Is that weird?  Or is that standard for right handed people??

Last night, my first night in a hotel on my own without Chris on hand, I gave myself the progesterone in oil injection.  I felt queasy and thought I was going to pass out as the needle got half way in.  Fortunately I didn’t, but the whole experienced has made me feel nervous about doing it again tonight :-s

We also experimented and replaced the needle with a new one after drawing up the oil to see if it made a difference.  It felt slightly sharper/easier to pierce the skin so I will keep doing that – I have enough needles stored up!!!

Medical procedures undertaken. Nil! Woohoo!!!

Any results?  The nurse called with the news about our embryos –  none of them were of sufficient quality by the end of day 6 to freeze.  Chris came to my work to give me a big hug.  The news definitely sucked…but now we know what we are dealing with.  We have both kind of pushed this news into the corner for another time to think about.  We need to focus on the right now instead.  These two little cheeky embryos had better stick!!

What are my symptoms?  The Ovarian Hyper Stimulation Syndrome symptoms have subsided, my ovaries have had lots of sharp pains and twinges the past two days, but the overall abdominal pains has almost but dissipated except for after eating.  Sore boobs….Chris hugged me and I yelped a bit from the tender boobs!!!!

How do I feel today? I had a lovely dream that I gave birth to a beautiful baby girl…like she was the most beautiful baby anyone had seen, the day of coming back home from the hospital we went to a party and showed her off to everyone, then I realised that I didn’t know how to breast feed her and some ladies had to help me. Awkward.  That was weird…but what wasn’t weird was the fact that this dream felt so real when I woke up for a slight second I thought it had actually happened for real 😦 I hope it was my body telling me something!!!

What’s next? Is it test time yet????!

The Final Countdown!!! 

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*Notes.  I take First Response Reproductive Health multi vitamin gummies (pre-natal), 5mg Melatonin at bed time and CoQ10 200mg gummies daily.  NSTR = Nothing Significant To Report.

IVF Diary Vol III: 14-16 Apr 16

Medication(s) administered and dosage(s). Transfer Day!!!!  PM Progesterone in Oil 1ml Intra-muscular injection, vivelle dot estrogen patches 0.1mg x2.

The past few days Chris has been giving me my progesterone in oil injections because I have been too sore to turn around and attempt to give one to myself in the behind!  Last night I prepped the medication as per usual, I iced my backside, then usually I go lie on the bed face down ready for Chris to inject, but this time I decided to secretly attempt to inject it myself!  I stood with my side facing the bathroom mirror (which I didn’t actually use in the end). I held the needle like a dart, but it’s very difficult to get a true dart like action when doing this to myself! There was no hesitating this time (I must have tried this about 10 times last cycle).  Rather than ‘dart’ it in, I placed the needle on my skin and pushed a little – it didn’t break the skin! I couldn’t feel it because I had iced the area anyway, so I pushed harder.  You definitely have to push that thing in a whole lot harder than you might think!!!  Anyway, it went in and I started to inject the oil.  Chris walked into the bathroom as I was doing this and for a second ignored me…then realised what I was doing, I hadn’t told him I was going to do it!!!  He was super impressed!! After I took the needle out I realised that there was quite a lot of blood with this one – typical!!!  I hadn’t got the gauze ready.  I felt a little dizzy, but not too bad.  I put my heat pad on the injection site as usual and gave Chris a high five!  Can I give a high five to all my lovely supporters who have cheered me on with this injection!!!  You helped me do it! Thank you so much!!!

Medical procedures undertaken. 5 Day Embryo Transfer!!!!! I was very nervous that we would arrive and the procedure would be cancelled because I was still feeling the OHSS symptoms.  We arrived at 0700AM at the clinic and we were second in line – there were only two of us patients in the OR today.  Learning my lesson from previous transfers I did not drink anything when I woke up and ensured my bladder was as empty as it could be by the time I arrived at the clinic.  I started sipping my water about 40 mins before they took me in.  They recommend drinking 24oz, but seriously my bladder can barely hold 12oz and with the OHSS the past few days I have only been able to drink about 8oz at the most before needing to pee.  Once I was in the OR the doctor told us we had two beautiful embryos to transfer today and one potential to freeze.  Once I was in the stirrups, the doctor placed the speculum and the other doctor used the transabdominal ultrasound on my tummy. OH MY GOODNESS it hurt!  And this time not from a full bladder!  The Doctor exclaimed ‘Oh yes, you do have super enlarged ovaries!’ I just laughed out loud because I could tell him that without the ultrasound.  Anyway, the canula tube that the embryos would be transferred by was inserted into my uterus and we were ready to go!  The embryologist checked my identity, and went back into his lab and showed us the embryos on the TV screen, confirming they were ours – one of the blastocysts had started to hatch since he took the photo earlier in the morning (a new thing the clinic does!!!!  Very cool because before Chris would snap a pic of the TV screen with his phone!).  At this point I was crying because of the pain from the ultrasound!!! We watched the embryos on the ultrasound screen ‘arrive’ into my uterus 🙂  We had the same doctor do our transfer for our Positive result last year…not that this should make a difference…but….this is a good sign!!!!!

Any results?  The two embryos we transferred were graded 3BB and 3CB (Here is a useful link to find out more about blastocyst grading).  There is one blastocyst that might make it to the freezer (FINGERS CROSSED!!! This would be amazing so it can join our other frozen embryo!!!) Sadly the other 7 embryos are highly unlikely to make it to the freezer 😦

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The one on the right is the 3BB the one on the left is the 3CB –  we haven’t decided on a name for them yet!

What are my symptoms?  Still suffering with OHSS, but the important thing is that it is not getting worse.  Now we have to hope that it doesn’t get worse if I get pregnant (OHSS can either appear or get worse as hCG levels increases once you actually get pregnant)…so we are still on the watch.  I am really getting bored of not being able to do anything other than a gentle walk – and that is a short distance gentle walk too 😦

How do I feel today? I was feeling really anxious last night about today’s transfer and I did not sleep well at all.  I had awful nightmares about the Brussels attacks too.  I woke up from them and couldn’t stop thinking about it for about an hour or so before I fell back asleep.  Today I am feeling relieved that we had at least two to transfer and all those emotions came bubbling up in the form of tears as we left the clinic – a true mix of happy, scared and pained feelings!

BUT I am PUPO! (Pregnant Until Proven Otherwise) and for that I am truly grateful.  We will be over the moon if this one blastocyst also makes it to the freezer.

What’s next? The two week wait…..eeeeeeek!!! To pee or not to pee (on a stick)…..that is the question!!!!

The Final Countdown!!! 

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*Notes.  I take First Response Reproductive Health multi vitamin gummies (pre-natal), 5mg Melatonin at bed time and CoQ10 200mg gummies daily.  NSTR = Nothing Significant To Report.